I haven’t posted much since Monkey hasn’t been playing soccer, which is his usual trigger.
But he has had a handful of non-exercise-induced attacks, which is a new and not-so-welcome development. It started out with a few attacks at bedtime. In a few cases, he had trouble turning them around with his breathing technique. I tried giving him benadryl, in case there was an allergy trigger, and which at the very least helped him to relax and fall asleep. He also had one attack on the school bus, which resulted in him feeling that his fingers were tingly. We went back to the pulmonologist who suggested that the attacks might be triggered by acid reflux, especially since they seem to happen when he lies down (except the one school bus one). They suggested we try Tums before bed. I thought they were crazy, but it did seem to help. Upon reflection, Monkey also realized that he does sometimes have heartburn, and can usually predict at bedtime whether he probably needs the Tums or not.
Last week he also had an attack during school. He called from the nurse’s office because he couldn’t get it under control. He didn’t to come home, so I went over to see him. He seemed ok to me but said he was still struggling to breathe, and his fingers were tingly again. I asked if they had antacids in the nurse’s office and they did so they gave him a dose, and he went back to class. I asked him to call me at the end of class to see how he was doing. By that time, about 1/2 hour later, he was feeling completely fine. This happened during standardized testing. The pulmonologist (I called between visiting him at school and hearing back from him) thought it was stress-triggered, but he didn’t seem at all stressed about the testing (which was no stakes for him, and just informational for the school). Since he hasn’t had any problems during finals this week (during which he has been somewhat stressed) I don’t think the stress trigger makes sense.
He starts PE next Wednesday. I have an appointment to meet with the teacher on Thursday to make sure he understands that (a) Monkey needs to be allowed to stop an activity immediately if he is having breathing problems, and (b) that he is not faking it and it isn’t caused by a lack of fitness, and he shouldn’t be penalized for this. He has PE first thing in the morning, which is not ideal from a reflux point of view, because he’ll just have had breakfast. I think he’ll be having Tums after breakfast to mitigate that issue.
He also plans to re-start the IMT this weekend.
January 18, 2008 at 9:05 pm |
Sorry to hear that the solution wasn’t as straightforward and complete as you had originally hoped. Good luck with the IMT and with him starting PE. It’s definitely good that you’re planning to talk with the PE teacher ahead of time, to make sure there aren’t any misunderstandings about the situation.
January 18, 2008 at 9:30 pm |
Thanks, Amy! Overall I’m still quite optimistic about the whole thing. I think that PE will hopefully give us enough “testing” ground to get some things worked out before soccer starts in the spring.
I’ve been in touch via email with VCD researcher who confirms that the tingly fingers are a not-uncommon symptom of VCD. She also said we seem to be on the right track.
January 19, 2008 at 4:17 pm |
I think this is still a very optimistic thing. You and him are able to figure out what is triggering these attacks and figuring out how to help him. My daughter starts PE Tuesday and I followed your lead and already talked to the teacher. She was very understanding, and said she’d let me know how everything was going. (I love keeping those lines of communication open) Maddie’s PE is right after lunch, and I do worry this will be a problem. We have to kinda wait and see. I am also noticing a huge connection with the stress trigger though. She had finals this week as well, and while the tests weren’t the stress, there was other stress that seem to trigger her. I can not thank you enough for all the links, and sharing your story. By you sharing your story I am able to watch for things in my own daughter and have a better “heads up” on the VCD.
January 29, 2008 at 3:20 pm |
It’s been a while since you posted an update. How are things going with PE? Are the Tums and the IMT helping (in general and specifically for PE)?